Showing posts with label positivity. Show all posts
Showing posts with label positivity. Show all posts

Wednesday, July 27, 2016

Batt'n 4 Boobies Words...

On Saturday, July 23, the best friends a girl could have came out to play softball and support my cancer battle. I couldn't let them do all that for me without telling them what they all meant to me, so I said these words to them before the tournament got started:

February 19 is when I got the call. It was a Friday morning about 10 am. I was standing at my kitchen counter when the call came. The doctor said, “Unfortunately…” He really didn’t need to say anything after that.
I don’t think anybody expects to have a cancer battle on their hands at 38 years old.

I went to see a genetics counselor soon after that and I found out that my specific type of breast cancer is something called triple negative breast cancer. The short version of that is that the drugs that are often used to treat breast cancer won’t work on me. Triple negative makes up 10-20% of breast cancers and has a lower 5 year survival rate compared to other breast cancers. That appointment with the genetics counselor was probably the hardest appointment for me. There was so much information and it was TOUGH information—information that I didn’t want to hear. I was so overwhelmed and discouraged and truly terrified.

I told my family and close friends that weekend and I knew my name was about to go on prayer lists around the community on Sunday morning and while I welcomed that completely, I wanted the news to come from me.
That Saturday, I wrote my first breast cancer blog that I called “In a World of Eeyores, be a Tigger.”

I ended that blog with the phrase “We got this” which came to be my mantra throughout this journey. WE got this—not me, but WE. My family, my friends, my community, complete strangers, a little of me, and above all, God.

I have been called a hero and strong and brave and all that and that’s totally sweet but I don’t believe I am any of those things. I am just a girl who loves her life and wants to do whatever it takes to stay here for as long as I possibly can. You may not know it right now, but you would do the same thing.

Since the beginning, I have said “This is part of my journey.” It has taken my strength, my money, my peace of mind, my tears, my hair, my taste buds—and on August 10, it will take my breasts.

And all that stuff really stinks and I could choose to be angry or sad about those things, and occasionally I AM sad about those things.

But what I wanted to tell you about today is not what cancer has taken from me, but what it has given to me. Sounds crazy, huh?

The Saturday that I wrote that first blog, I got a Facebook message from a friend. I was up at Edgemont school walking that day. I felt great. I didn’t feel like I had cancer. It was a crisp February day, a sunny day after a week of heavy snow. My friend wrote to tell me that her sister was a breast cancer survivor and if I ever wanted to talk to her, that she was sure she would be willing to talk to me. I gave her sister a friend request that day and she has been there for me just like a big sister from that day on. So many breast cancer survivors have reached out to me throughout the last five months. 

I have received hundreds of cards and just as many emails since my diagnosis and they have been a tremendous source of encouragement for me. I always laughed when people would say “I know you’re probably sick of hearing this…” No. I never have gotten sick of hearing that you are supporting me and praying for me and cheering me on.
I have been given so many gifts! Holy cow! You guys have been so generous to me and I appreciate it more than I can ever tell you! Money, meals, services, all sorts of care packages, along with so much love. You all are incredible.

My best friend and soul mate Deana has been with me the entire way. She has cheered me on and she has dried my tears. She has been with me to every appointment, she has prayed with me and she has cussed with me.  She has never left my side.

My husband and my kids and my parents and my in-laws and my neighbors and so many of you have gone above and beyond and I am so grateful to you all.

I hate wearing shirts that show my port. You would think a mother would be a source of confidence and empowerment for her daughter, but the opposite has been true. Natalie has been there time after time to tell me that I am beautiful even with no hair and an ugly port sticking out of my chest.  My boys have been so protective of me and have chipped in to help with whatever I needed.
Kevin has had to be mom and dad at times. He has taken over most of the chores at home on top of everything else. I jokingly call him Hazel the housewife.
You all get to read about twinkling, happy lightning bug and He has had the misfortune of catching grumpy, weak, barely twinkling lightning bug on so many occasions. I am grateful for his love and patience.

You would never believe this, but sitting in a room full of people getting chemo was a blessing. You will be hard pressed to find better people than the ones you encounter in the chemo room. It is truly a humbling experience. My oncology nurses were absolutely incredible. I believe wholeheartedly that people have been strategically placed in my path throughout the last five months—I think that’s one of the coolest things God has done for me. The people I have encountered haven’t been by chance. They were meant to cross my path.

You know…You don’t have to have cancer to slow down just a little and breathe in what is all around you. That Saturday that I told you I was walking up at the school—I took pictures that day of the water and the birds and the sky. It all looked so very different to me. I had different eyes that day. I have become a lot more in tune with the simple things since the big C came along.

That Friday morning in February, I was so nervous as I awaited my biopsy results and that was the day that my daughter said “Hey mom, come look at these birds!” I walked to the front door and the cardinals were perched in my maple tree. Two cardinals—a male and a female. When I looked out there I smiled and this peace that I can’t even describe came over me. Natalie went to school and I pulled out my laptop and googled, “what does it mean when a cardinal visits.” This is exactly what I found when I looked it up, “A cardinal is a representative of a loved one who has passed. When you see one, it means they are visiting you. They usually show up when you most need them or miss them. They also make an appearance during times of celebration as well as despair to let you know they will always be with you. Look for them, they’ll appear.”

I lost my grandparents in 2013 & 2014. I was super close to them and I know in my heart who sent those red birds.

I urge you today to look for the cardinals…not just the cardinals but to look at the beauty of nature and your children and the dew on the grass and everything around you with grateful eyes. I promise you that will make a difference in your life.

This week I started thinking about how to convey to you all what you have meant to me throughout this journey. I hopped in the shower one day and I heard the childhood chant from the game Red Rover going through my head. Remember that game? You would stand side by side with one another and link hands and call for someone to come over? Red rover, red rover, send Johnny on over. And Johnny would come barreling through trying to break the links and penetrate the line. Sometimes he would make it and sometimes he wouldn’t. It all depended on how tight those links were. Cancer made it through those links and invaded my body. Then all of you all—my friends and my family and some people who don’t even know me—came together and tightened those links and at every turn when cancer tried to get through and destroy my mind or my spirit, your love has been the strength that has kept that cancer out. I could not have done this without all of you. You inspire me every day.

I have completed eight rounds of dense dose chemotherapy and on August 10 I will have my surgery. If my cancer is gone (which I believe 100% that it is,) my prognosis is in the upper 90% range.

Thank you to everyone who has been a part of this event and blessings to each of you who have come out to support me!

We got this!
-lightningbug





















Tuesday, May 17, 2016

Nothing Will Ever Really Be the Same...

Today was Chemo Day number five. My chemo regimen consists of four rounds of drugs Adriamycin and Cytoxan and four rounds of a drug called Taxol (total of eight treatments every other week for a total of 16 weeks.) I will finish up at the end of June. I began Dose Dense Taxol today and my biggest fear was an allergic reaction. I was made aware of increased allergic reactions to Taxol. I have prayed and prayed that I wouldn’t have an allergic reaction to this medication. Today I met with my doctor and he seemed pleased with where I was and how I was responding to treatment. He told me that he thought this drug would be much easier on me and also I will no longer have to come in the next day for the Neulasta shot (I sometimes think the Neulasta shot was harder on me than the actual chemo!)

As I sit here and think about what I am feeling and what I want to share, the tears just roll down my cheeks.  I have learned so much over the last few months—about myself, about the human spirit, about generosity and selflessness, about faith, about family and friends, about my community, about cancer and those who are going through it and those who have survived it.  

As with every chemo and every appointment, my best friend has been by my side. Because today’s treatment lasted so long, she had to leave to get her kids from school and I was by myself for a couple of hours. Not long after she left, I missed her! I thought about how lucky I am to have her by my side every step of the way—to listen to my irrational thoughts, to cry with me that one time in the car (yes, we only cried together one time over this), to laugh with me, to ask questions, to insist that the doctors run every test imaginable so I will not worry, to untangle my tubes so I can go to the bathroom, to get me Lay’s and ginger ale, and most of all, to just be there. Always.

There’s a girl who takes treatment on the same day as me and we do not even know each other’s names but when we see each other, we light up and there’s a shared bond that’s really kind of unexplainable. We’re both going through the same thing. I think about how exciting it will be when she finishes and when I finish and we can blow that popsicle stand, but as weird as it sounds, I have spent crucial time with these people and it’s going to be hard to leave them all (the nurses, the staff and the patients.) I have compared fighting cancer to being a soldier and although I don’t know if I am right about this, I suspect that when a soldier gets to go home to his or her family, it’s the most wonderful thing, but at the same time, there’s that same feeling of leaving those you have served alongside through some of the scariest and hardest times of life.

I am 5/8 of the way through this part. I will have my surgery in August and then my second surgery will be in November. I have said that I just want to get this all over with so I can get on with my life and have normal dilemmas once again like what am I going to cook for dinner and who can get the kid from practice tonight. 

While I won’t have to go to chemo every other week or have the side effects or have drain tubes or all the other things that are happening now and in the future, this will now forever be a part of who I am. Nothing will really ever be the same as it was because I am no longer the same as I was. My friendships are deeper, my gratitude is richer, my faith is deeper, my family is stronger, and my priorities are realigned.

I still hate doing dishes and cleaning the toilet. I guess some things are still the same.


-lightningbug